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I did . They started when I was 14 and pretty much ruined my life at the time . I was told several times that they ran in 7 tear cycles . They stopped when I was 21 . My last attack as the worst and ended in minutes after I bowked up . Best of luck mate .Anyone else suffer from these bastards? Feel like eyeball is going to explode.
Sorry I fucked that up . I meant multiples of 7 years , I think . Y'nar 7, 14, 21 (god forbid)Cheers I’ve had them for more than 7 years that’s for sure.
I guess I can be happy they aren’t full blown clusters
Check your blood pressure and blood sugar.Anyone else suffer from these bastards? Feel like eyeball is going to explode.
Was diagnosed with cluster headaches about 7 year ago. Last 8-week long daily (sometimes twice/three times a day) bout was last year so i'll be expecting the horrible bastards back sometime next May/June.
Jesus fella they sound truly awful.
I did . They started when I was 14 and pretty much ruined my life at the time . I was told several times that they ran in 7 tear cycles . They stopped when I was 21 . My last attack as the worst and ended in minutes after I bowked up . Best of luck mate .
Our lass gets them but without the pain , just the flashing lights etc..
That’s pretty much where I’m at now...Never knew about that 7 year cycle thing, I had my first when I was 15 and last at 22. Been more than 4 years since the last one.
Horrendous things, I used to get blind spot followed by hours of pounding headache and nausea.
There was no treatment available when I had attacks . Jesus they were f***ing bad times . No treatment, no sympathy but no shortage of triggers .I suffer and take imigram (sp). It’s been a couple of months since my last episode and I’ve no obvious triggers.
I’m good at spotting them coming on and normally one tablet works
Was diagnosed with cluster headaches about 7 year ago. Last 8-week long daily (sometimes twice/three times a day) bout was last year so i'll be expecting the horrible bastards back sometime next May/June.
Anyone else suffer from these bastards? Feel like eyeball is going to explode.
Have you been on OUCHUK.org? The Organisation for the Understand of Cluster Headache.
Yep. Only blessing is they tend to leave me alone when at work unless I try to take painkillers (sumatriptan injections) which kill the pain within 5 minutes but just hit me harder and more often. I've given up on this and purely rely on oxygen for 10mins intervals for the duration. I wouldn't wish them on anybody.
Blimey another fellow CH sufferer. Solidarity marra! Have you been on OUCHUK.org? The Organisation for the Understand of Cluster Headache. Loads of great info there and a forum for sufferers and their families to discuss the latest treatments and give each other support.
My last period of remission was about 3 years (when I first started getting them in my late teens/early 20's it was only about a year long and has been gradually getting longer) and it's been about 3 years since my last bout so I'm expecting a visit from The Beast pretty soon. Already stocked up on a few weeks worth of sumatriptan injection packs from my last bout. I'll be taking verapamil again this time around too after trying it for the first time last bout.
Ah, I can't have the oxygen because I'm a smoker. Sensibly so, as filling a room with oxygen then having a smoke is a surefire way to make your house explode.
Verapamil as a preventive worked a treat for me last time. Reduced my attacks from 6 a day at KIP-10 down to only a couple at about KIP-2 or 3. I was taking over 1000mg a day though, so it was making me weak and fuzzy-headed instead. I'll take it though. Better fuzzy-headed and weak than 6 full blown attacks a day and only being able to abort a couple per day with the injections.
Blimey another fellow CH sufferer. Solidarity marra! Have you been on OUCHUK.org? The Organisation for the Understand of Cluster Headache. Loads of great info there and a forum for sufferers and their families to discuss the latest treatments and give each other support.
My last period of remission was about 3 years (when I first started getting them in my late teens/early 20's it was only about a year long and has been gradually getting longer) and it's been about 3 years since my last bout so I'm expecting a visit from The Beast pretty soon. Already stocked up on a few weeks worth of sumatriptan injection packs from my last bout. I'll be taking verapamil again this time around too after trying it for the first time last bout.
You sure it's migraines?
If it's a sharp pain through the eyeball that feels like you've been stabbed through the eyeball with a knitting needle that someone continues to flick every few seconds afterwards then it could be CH. As far as I'm aware, migraines are more thuddy, less stabby. And with migraines you want to lie down but with CH you can't sit still, you have to writhe about/roll around/rock back and forth.
Either way, best wishes marra. Head pain isn't funny.
FFS typo... The Organisation for the Understanding of Cluster Headache.
Ah, I can't have the oxygen because I'm a smoker. Sensibly so, as filling a room with oxygen then having a smoke is a surefire way to make your house explode.
Verapamil as a preventive worked a treat for me last time. Reduced my attacks from 6 a day at KIP-10 down to only a couple at about KIP-2 or 3. I was taking over 1000mg a day though, so it was making me weak and fuzzy-headed instead. I'll take it though. Better fuzzy-headed and weak than 6 full blown attacks a day and only being able to abort a couple per day with the injections.
Sounds wrong but reassuring to know someone else gets them. I've never spoken or met anyone else who gets them. Yes - I have a look on the OUCH website in times of need/desperation.
Yeah, mine started at about 18yo, went to the doctors at 21 and they basically laughed me out the door when I said I got headaches so never spoke to anyone about them, until I met my missus at 30yo. She saw the state of me and hassled me for aout 3 years to keep hassling the GPs, I eventually saw a GP (young lad who was a locum) who referred me to a neurologist who diagnosed CH when I was 34. Its the first time I was taken seriously.
I've never tried Verapamil, and to be honest since we moved house my current GP was very sceptical about giving me a prescription for Sumatriptan injections. Its daft but I feel like a right twat going to the GP and trying to tell them what sort of pain I'm in. Having said that my CH, as daft as it sounds, is like a deal with the devil - if I don't attempt to manage the pain he'll hit me once a day at some point in the evening/night. If I fuck him about with painkillers, he hit me multiple times the following day when its as inconvenient, ie. at work/out. So basically I get Oxygen from BOC gases ( who are excellent - will deliver within 2 hours if I need some in an emergency) which I take in 10 minute intervals and pace the floor for 1.5-2 hours.
I would recommend stopping smoking and getting O2.
If I hear of a miracle cure I'll let you know!