P
Pij
Guest
I absolutely understand what you are going through, my youngest daughter was born with severe autism, and is now in the process of being diagnosed with Tourettes. She is 7 years old, mute, in nappies and requires my full time care, to any outsider it's unbelievable that any person can deal with this situation, but to me it's something I've learned to accept. Acceptance of the situation is not necessarily acceptance of the child, you can grieve for the life you wished for your child, and love them unconditionally, the two are not synonymous. You face a life of caregiving on a level that was unexpected, your child being so young you don't know what to expect for their future, you would not be human if it didn't scare you, if it didn't hurt you, if it didn't push the boundaries of your sanity. There is no shame in what you or your girlfriend is feeling. Your girlfriend is feeling exactly what you are, scared for the future of your child, and scared that seeing you struggle might indicate a change in the relationship. The best way to approach this is reassurance. Show her that you love her and your child, and that this condition doesn't make a difference to that love and wanting to be a father/partner. Your fear is born out of concern for your family's wellbeing. Encourage her to talk about her feelings, she's most likely feeling both guilty for struggling and protective of your child, those first talks will be fraught with frustration, but persevere.I've been suffering from depressive thoughts for just over a year now and I am still struggling with it now.
I've read through a few of the posts on this thread and thought about what it is that is the cause of the problem, however the causes of the problem are the things that I don't want to lose at all.
First of all my 18 month old son is a big problem, due to him being hemiplegic (a form of cerebral palsy), and the second problem is my fiancee, who I presume is also having the same depressive thoughts that I am having.
My depressive thoughts are always on my son and whether he will learn to be able to walk properly or use his right hand at all and even if he can, whether this will lead to him getting bullied when he gets a bit older, due to my girlfriend (and maybe me aswell) wanting him to go through the conventional schools rather than special schools. Also while looking after a 18 month old, I am seriously having trouble having the patience to handle the screaming fits and temper tantrums, due to these depressive thoughts, which can suddenly turn to angry thoughts at the flick of a switch.
And to top it all off I feel like I can't seriously confide in my girlfriend at all, and I feel she feels the same way with me aswell, and all I can see is the cycle repeating over and over again until one of us finally snaps.
I also feel like I can't confide in a gp neither because if I am open and honest with them about everything, it might lead to social services etc getting involved due to it being both parents.
I know its a long winded post but if anyone reads through it I would seriously appreciate a bit of support and I will be eternally grateful.
As for dealing with your child's condition, the tantrums won't last forever, if you can find their triggers they might even be resolved. For my daughter and my son (also autistic), the tantrums were mostly caused by their inability to communicate, with extra focus on trying to help their communication the tantrums have lessened alot.
18 months is a short space of time to allow yourself to adjust to such a highly demanding life, be patient with yourself aswell as your family, in time your family life will be second nature. Talking helps, on here or in therapy; I felt selfish for needing therapy, in a way I felt I 'should be able to cope', it took time to learn that not every parent can have a gung ho coping mechanism, some struggle more than others, and it has no bearing on how good a parent you are.