Cheesy Feet
Striker
Good luck lad..keep positive mate.
Follow along with the video below to see how to install our site as a web app on your home screen.
Note: This feature may not be available in some browsers.
And to you mate. I know my dad has been torn between the two but Durham has bugs the RVI doesn’t and they don’t like you going between them both or something like thatBest of luck lad
Me fatha has been keeping us updated and couldn’t believe what he was telling us, fingers and toes crossed for you
And to you mate. I know my dad has been torn between the two but Durham has bugs the RVI doesn’t and they don’t like you going between them both or something like that
some of you might know/remember my son was diagnosed with cerebellitis back in December. Well it turns out that was a misdiagnosis and what he actually does have is an incredibly rare auto immune disease called opsoclonus myoclonus syndrome, which can effect as little as 1 in 10 million children.
OMS can be triggered by a viral infection or a neuroblastoma, depending which doctor you listen to it can be as high as 80% of the time it’s caused by a neuroblastoma but our doctor puts it more like a 50/50 chance. We’ve spent the last week in the RVI and finally managed to get MRI scans done yesterday with a view to potentially getting back the results today to tell us if he has a NB.
Obviously we’re hoping there’s no signs of NB and putthis down to a post viral cause and begin the long and unsure road to recovery with steroid treatment, with no real guarantees this condition will ever be fixed. It’s so rare and there’s so little information and research about it, the doctors are fighting in the dark against it. Just glad our doctor has seen and dealt with it before.
Just wanted to vent a bit before what seems to be the biggest day in my life so far.