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Kids with Autism

sonsofthewear said:
cahms suspect my son to be autistic and add, we are waiting for an assessment now. its bloody hard work to cope with him!
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My son is 7 now. Been waiting for him to be assessed since nursery and the cab keeps getting kicked down the road. He isn't hard to deal with but it's frustrating because it's effecting his education. His teachers seem as frustrated as we are about the way assessments work.
 

Ciro_DiMarzio said:
My son is 7 now. Been waiting for him to be assessed since nursery and the cab keeps getting kicked down the road. He isn't hard to deal with but it's frustrating because it's effecting his education. His teachers seem as frustrated as we are about the way assessments work.
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that doesn't sound good. we were referred to cyps in November and told it'll be about a year- 18 months. we looked into the right to choose but we got a lot of conflicting info and decided to wait it out. he's not naughty, just annoying as fuck and struggling with school.
 
sonsofthewear said:
that doesn't sound good. we were referred to cyps in November and told it'll be about a year- 18 months. we looked into the right to choose but we got a lot of conflicting info and decided to wait it out. he's not naughty, just annoying as fuck and struggling with school.
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We've been told 2 - 2 1/2 years for my eldest to be assessed now, but also - CAMHS have refused to support her (some low-level self harm we wanted to address before it became a bigger thing) because they "suspect her difficulties may be indicative of ASD." I just hit the point where it was laugh or cry and chose the laughter option at how stupid the world is. She's challenging - unlike the younger (diagnosed) child whose rigidity kicks in in terms of following rules and doing everything "right" and she could have gone right off the rails with different parents who didn't quite get how to handle her - she's gone through periods of lashing out at me in particular, but seems to have got a handle on that as she gets older. At the moment she's in a relatively OK place - so we went for the waiting list while things were settled, rather than having to try to start tackling everything if she hit into crisis.

Ironically my boss heads up the SALT service in CAMHS in the neighbouring county - she was furious when she heard about the issues we'd been having! Very frustrating when I work with a bunch of people qualified to do ADOS assessments, and I'm due to be trained to do them myself next time work run the course - but still having to serve our years and years on the waiting list!
 
Gremlin said:
We've been told 2 - 2 1/2 years for my eldest to be assessed now, but also - CAMHS have refused to support her (some low-level self harm we wanted to address before it became a bigger thing) because they "suspect her difficulties may be indicative of ASD." I just hit the point where it was laugh or cry and chose the laughter option at how stupid the world is. She's challenging - unlike the younger (diagnosed) child whose rigidity kicks in in terms of following rules and doing everything "right" and she could have gone right off the rails with different parents who didn't quite get how to handle her - she's gone through periods of lashing out at me in particular, but seems to have got a handle on that as she gets older. At the moment she's in a relatively OK place - so we went for the waiting list while things were settled, rather than having to try to start tackling everything if she hit into crisis.

Ironically my boss heads up the SALT service in CAMHS in the neighbouring county - she was furious when she heard about the issues we'd been having! Very frustrating when I work with a bunch of people qualified to do ADOS assessments, and I'm due to be trained to do them myself next time work run the course - but still having to serve our years and years on the waiting list!
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have to say like, cahms were great when we got to to the meeting stages. The lass we saw was excellent with the bairn and she saw it immediately, I thought he was being 'normal' in our meetings but reading her notes, she saw every little thing to my relief. I pray it isn't 2 years, he needs medication or hes gonna fall aside at school and its very difficult to maintain a good relationship with him at home cos he is completely in his own world.
 
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