I am officially cancer free - for now

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How are you doing @foggy? Have you made it to a match?

I have my next CT scan 15 Feb. Pelvis/Abdomen/Thorax with contrast. The last one was clear but the tumour biopsy showed my cancer was 'highly aggressive' so it's squeaky bum time again. Scanxiety as they call it in cancerland. I've been referred to a 'chronic pain consultant' to adjust medication for my ongoing pain. My innards have been cut and stapled so much the nerves are having their say about it. And by the feel of things they are still quite unhappy about the goings on.

Anyway, I'm adjusting to my new slow pace of life. The routine is the dog gets me up, gets me out which I never feel like doing but am always glad I did.

I'm aiming for the Gillingham match when it will be six months since the operation. I was told six months was the point where I could up things a bit. The last time I saw us play them I'm sure there was a few dozen mags in the paddocks but I've read since it was thousands. My memory must be shite.
 
I have my next CT scan 15 Feb. Pelvis/Abdomen/Thorax with contrast. The last one was clear but the tumour biopsy showed my cancer was 'highly aggressive' so it's squeaky bum time again. Scanxiety as they call it in cancerland. I've been referred to a 'chronic pain consultant' to adjust medication for my ongoing pain. My innards have been cut and stapled so much the nerves are having their say about it. And by the feel of things they are still quite unhappy about the goings on.

Anyway, I'm adjusting to my new slow pace of life. The routine is the dog gets me up, gets me out which I never feel like doing but am always glad I did.

I'm aiming for the Gillingham match when it will be six months since the operation. I was told six months was the point where I could up things a bit. The last time I saw us play them I'm sure there was a few dozen mags in the paddocks but I've read since it was thousands. My memory must be shite.
Little steps @foggy marra. Little steps.
 
I have my next CT scan 15 Feb. Pelvis/Abdomen/Thorax with contrast. The last one was clear but the tumour biopsy showed my cancer was 'highly aggressive' so it's squeaky bum time again. Scanxiety as they call it in cancerland. I've been referred to a 'chronic pain consultant' to adjust medication for my ongoing pain. My innards have been cut and stapled so much the nerves are having their say about it. And by the feel of things they are still quite unhappy about the goings on.

Anyway, I'm adjusting to my new slow pace of life. The routine is the dog gets me up, gets me out which I never feel like doing but am always glad I did.

I'm aiming for the Gillingham match when it will be six months since the operation. I was told six months was the point where I could up things a bit. The last time I saw us play them I'm sure there was a few dozen mags in the paddocks but I've read since it was thousands. My memory must be shite.
They gave you a good going over in Basingstoke. It's bound to take a while to get back to any form of normality. Keep knacking the bastard.
 
I have my next CT scan 15 Feb. Pelvis/Abdomen/Thorax with contrast. The last one was clear but the tumour biopsy showed my cancer was 'highly aggressive' so it's squeaky bum time again. Scanxiety as they call it in cancerland. I've been referred to a 'chronic pain consultant' to adjust medication for my ongoing pain. My innards have been cut and stapled so much the nerves are having their say about it. And by the feel of things they are still quite unhappy about the goings on.

Anyway, I'm adjusting to my new slow pace of life. The routine is the dog gets me up, gets me out which I never feel like doing but am always glad I did.

I'm aiming for the Gillingham match when it will be six months since the operation. I was told six months was the point where I could up things a bit. The last time I saw us play them I'm sure there was a few dozen mags in the paddocks but I've read since it was thousands. My memory must be shite.
Good luck marra...oh and you are right about the Mags that match.
 
I have my next CT scan 15 Feb. Pelvis/Abdomen/Thorax with contrast. The last one was clear but the tumour biopsy showed my cancer was 'highly aggressive' so it's squeaky bum time again. Scanxiety as they call it in cancerland. I've been referred to a 'chronic pain consultant' to adjust medication for my ongoing pain. My innards have been cut and stapled so much the nerves are having their say about it. And by the feel of things they are still quite unhappy about the goings on.

Anyway, I'm adjusting to my new slow pace of life. The routine is the dog gets me up, gets me out which I never feel like doing but am always glad I did.

I'm aiming for the Gillingham match when it will be six months since the operation. I was told six months was the point where I could up things a bit. The last time I saw us play them I'm sure there was a few dozen mags in the paddocks but I've read since it was thousands. My memory must be shite.

It was about 18 months for my Mam to be relatively pain free but she still feels it occasionally. Hers was a chunk of gullet, stomach & intestine mind, I think yours is more extensive. Over ten years now, and she was at the match with me over Christmas.
 
I have my next CT scan 15 Feb. Pelvis/Abdomen/Thorax with contrast. The last one was clear but the tumour biopsy showed my cancer was 'highly aggressive' so it's squeaky bum time again. Scanxiety as they call it in cancerland. I've been referred to a 'chronic pain consultant' to adjust medication for my ongoing pain. My innards have been cut and stapled so much the nerves are having their say about it. And by the feel of things they are still quite unhappy about the goings on.

Anyway, I'm adjusting to my new slow pace of life. The routine is the dog gets me up, gets me out which I never feel like doing but am always glad I did.

I'm aiming for the Gillingham match when it will be six months since the operation. I was told six months was the point where I could up things a bit. The last time I saw us play them I'm sure there was a few dozen mags in the paddocks but I've read since it was thousands. My memory must be shite.
Good luck @foggy keep fighting the bastard!

There'll be just as many mags at the Gillingham game this time as well, with SAFC fans' collective memories of the numbers all fading exponentially year on year.
 
It was about 18 months for my Mam to be relatively pain free but she still feels it occasionally. Hers was a chunk of gullet, stomach & intestine mind, I think yours is more extensive. Over ten years now, and she was at the match with me over Christmas.

That is comforting to read my good man. One that your mam is doing well and two that it gives me hope and a light in this relentlessly painful tunnel. My operation report went on over two sides of foolscap starting with the removal of my umbilicus and on to stuff with staples and resections. They also took part of my anus. I often wonder about that bit. I’ve no idea or wish to know what anus looks like.

Maybe too much info. Sorry. All the best.
 
So. Back in January they told me some bits of my big tumour, my bugger on of 2017, that had split my bowel before being removed in bit of an emergency operation, had planted themselves in my abdominal lining, my peritoneum, and I was now incurable, terminal, on palliative chemotherapy or in its shortest version, fucked.

I would have a new brew of chemotherapy to put the brakes on. Hopefully. Tests had shown my cancer to be rather aggressive. I imagined it had sharp teeth and a bad attitude.

There was however, a silver lining. A few surgeons/hospitals in this wonderful National Health Service that we have, where there is a network of people who might just fix you with surgery carried out by a select few, and others who use the communication channels available nationally, to actually get you on the operating table wherever it was in this country, might be able to have a bash at fixing me.

It turned out Basingstoke was my Shangri-La.

This was dependent on the cancer with teeth's reaction to the new chemo and my cancer markers. They had to be less than 20 or summat. And I had to be in good condition so I didn't peg it under the knife.

In May I found the brakes had indeed been put on. Chemo was shit but it was filing those teeth so I cracked on. And droned on on here in the meanwhile. Sorry about that but thanks for the support.

In July I went to Basingstoke to see a very nice man from Greece who talked at length about my cancer, with scan pictures on the computer and everything. I scored 5 on the cancer marker and unlikely to peg it so was offered Cytoreduction and Hipec to Debulk me. Fuck yes.

I wrote about that too. It hurt a bit and for a long time. It still hurts but my kitchen cupboard second from the right as the top has more painkillers than Boots so I can mange.

Last week I went to Bishop Auckland hospital for a CT scan, Thorax, Abdomen and Pelvis with Dye. 3 months after the Op.

Today I had a phonecall.

I am NED. The best word in cancerland. No Evidence of Disease. To quote. Nothing in bowel, peritoneum, liver, lungs, bones - the usual suspect spread in my type of cancer. And my lymphs show no enlargement. Yay, go my lymphs you non swelling bastards.

Recurrence is 'very common' but right now I do not have cancer. And that my good friends feels f***ing fantastic.

All the best.
This post should become the most liked on the forum. Should be GERLD too. Congrats mate I’m over the moon for you!!
 
I have my next CT scan 15 Feb. Pelvis/Abdomen/Thorax with contrast. The last one was clear but the tumour biopsy showed my cancer was 'highly aggressive' so it's squeaky bum time again. Scanxiety as they call it in cancerland. I've been referred to a 'chronic pain consultant' to adjust medication for my ongoing pain. My innards have been cut and stapled so much the nerves are having their say about it. And by the feel of things they are still quite unhappy about the goings on.

Anyway, I'm adjusting to my new slow pace of life. The routine is the dog gets me up, gets me out which I never feel like doing but am always glad I did.

I'm aiming for the Gillingham match when it will be six months since the operation. I was told six months was the point where I could up things a bit. The last time I saw us play them I'm sure there was a few dozen mags in the paddocks but I've read since it was thousands. My memory must be shite.

Good luck for the 15th Fogmeister, will be thinking positive thoughts on the Friday for you.
 
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