vidal baboon
Winger
keep going matey, keep doing what you're doing and let everyone be humbled by your fight
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Hi Mr F Stew Graham as you may have saw has succumbed to this horrible disease
Brings it home when it happens to somebody you know. Just hope you keep positive and look forward to your trips and I would also hope your family know about these musings on here. You're an inspiration to many, keep fighting mate .
Are you scared?
No I’m not scared. I don’t think it’s fear I feel. I accept where I am. I have the odd humph. Normally just after a pee and I turn and see myself in the mirror on the bathroom wall. I see an ill person and I have a sinking feeling. But then I wash my hands. Might even brush my teeth. Then move on.
The thing that hurts the most is the effect on those close to me.
No I’m not scared. I don’t think it’s fear I feel. I accept where I am. I have the odd humph. Normally just after a pee and I turn and see myself in the mirror on the bathroom wall. I see an ill person and I have a sinking feeling. But then I wash my hands. Might even brush my teeth. Then move on.
The thing that hurts the most is the effect on those close to me.
I get this so much. My parents have already lost both my 2 sisters (twins) when they were 28 and 32. I am their last 'child' left alive. I couldn't bare the thought that they lost me aswell, I am determined to outlive them to save them that pain but who knows? I am 47 now and things happen as you well know.
Worse for me though is I am a single parent and 2 of my 3 kids have special needs. My 10 year old son has autism and dyspraxia and my 19 year old daughter has a rare chromosome disorder called Ring 18. My son with autism could hopefully get by without me with help, but my daughter is severely disabled both mentally and physically and she would think I had abandoned her if I died, she has no understanding whatsoever. I can't even think about it, it brings on panic attacks. She relies on me for every single thing. Sorry I know this is totally irrelevant to your situation but just wanted to let you know I 'get' exactly how you feel with certain things xx
All the best mate, you sound like a hell of a son/dad.I get this so much. My parents have already lost both my 2 sisters (twins) when they were 28 and 32. I am their last 'child' left alive. I couldn't bare the thought that they lost me aswell, I am determined to outlive them to save them that pain but who knows? I am 47 now and things happen as you well know.
Worse for me though is I am a single parent and 2 of my 3 kids have special needs. My 10 year old son has autism and dyspraxia and my 19 year old daughter has a rare chromosome disorder called Ring 18. My son with autism could hopefully get by without me with help, but my daughter is severely disabled both mentally and physically and she would think I had abandoned her if I died, she has no understanding whatsoever. I can't even think about it, it brings on panic attacks. She relies on me for every single thing. Sorry I know this is totally irrelevant to your situation but just wanted to let you know I 'get' exactly how you feel with certain things xx
All the best mate, you sound like a hell of a son/dad.
And you. xDaughter/Mam - but thank you